PARENTING STRESS AND CARE QUALITY IN FAMILIES OF CHILDREN WITH DISABILITIES
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Abstract
The aim of this study was to examine parenting stress and care capacities in families of children with disabilities, differences in relation to families from typical population and structure of relations between dimensions of parenting stress and care quality in families of children with disabilities. The sample consisted of 202 couples of parents of preschool children. In that sample, there was 75 couples of parents of children with disability and 127 couples of parents from typical population. The sample was collected in preschool institutions, on the territory of Vojvodina. Parenting stress was measured by some dimensions from Parenting stress Index (Social isolation, Restriction of role, Sense of competence, Reinforcement given to the parent, Acceptability, Demandingness). Parent investment in child questionnaire (PIC-Parent Investment in Child, Bradley 1997) was used to measure care quality. Results indicate statistically significant differences in stress between the parents of children with disability and parents of typicaly developing children, on following dimensions of parenting stress: Social Isolation (F(1,381)=7.51, p<.01), Restriction of role (F(1,383)=5.14, p<.01), Acceptability (F(1.382)=64.29, p<.01) and Demandingness (F(1,362)=42.53, p<.01) and on overall score on parent investment in child (F(1, 383)= 10.72, p<.01). Structure of relation between dimensions of parenting stress and care quality indicated that there was two parent profiles: (1) the parent who experiences high level of parenting stress in all measured domains and has the most difficulties in accepting the child and parental role and (2) the parent who experiences high level of parenting stress which arises from reinforcement given to parent and acceptabilizy of the child and has compromised capacities for adequate responding to child’s needs and emphasized need to be by child’s side.
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Mihić, I., Rajić, M., & Kopunović Torma, D. (2017). PARENTING STRESS AND CARE QUALITY IN FAMILIES OF CHILDREN WITH DISABILITIES. ANNUAL REVIEW OF THE FACULTY OF PHILOSOPHY, 41(2), 247–268. Retrieved from https://godisnjak.ff.uns.ac.rs/index.php/gff/article/view/1883
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Психологија
References
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Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams: Supporting parents’ adaptation to their child with special needs. Infants and Young Children, 16(3), 184-200.
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Case, S. (2000). Refocusing on parent: What are the social issues of concern for parents with disabled child. Disability & Society, 15(2), 271-292.
Cawley, J., Hayden, S., Cade, E., & Baker-Kroczynski, S. (2002). Including students with disabilities into the general education science classroom. Exceptional Children, 68(4), 423-435.
Clements, M., & Barnett, D. (2002). Parenting and attachment among toddlers with congenital anomalies: Examining the Strange Situation and attachment Q‐sort. Infant mental health journal, 23(6), 625-642.
Cousino, M. K., & Hazen, R. A. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review. Journal of pediatric psychology, 38(8), 809-828.
Crnic, K. A., Friedrich, W. N., & Greenberg, M. T. (2002). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology. Best of AADD: Families and developmental delay: AA collection of notable AADD journal articles across the 20th century, 105-117.
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Deater-Deckard, K., & Scarr, S. (1996). Parenting stress among dual-earner mothers and fathers: Are there gender differences? Journal of Family Psychology, 10(1), 45-59.
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Evans, D. (1989). Psychological Impact of Disability and Illness on Medical Treatment Decisionmaking, The. Issues of Law & Medicine, 5, 277-299.
Feniger-Schaal, R., & Oppenheim, D. (2013). Resolution of the diagnosis and maternal sensitivity among mothers of children with intellectual disability. Research in developmental disabilities, 34(1), 306-313.
Fish, W. W. (2006). Perceptions of parents of students with autism towards the IEP meeting: A case study of one family support group chapter. Education, 127 (1), 56-68.
Hanak, N. (2012). Prenatalna afektivna vezanost i psihološki procesi tokom trudnoće: priprema za roditeljstvo. U: Stefanović-Stanojević, T., Mihić, I., Hanak, N. (Ur.), Afektivna vezanost i porodični odnosi: razvoj i značaj. (str. 57-81). Beograd: Centar za primenjenu psihologiju.
Haskett, M. E., Nears, K., Ward, C. S., & McPherson, A. V. (2006). Diversity in adjustment of maltreated children: Factors associated with resilient functioning. Clinical psychology review, 26(6), 796-812.
Heiman, T. (2002). Parents of children with disabilities: Resilience, coping, and future expectations. Journal of developmental and physical disabilities, 14(2), 159-171.
Hoffman, C. D., Sweeney, D. P., Hodge, D., Lopez-Wagner, M. C., & Looney, L. (2009). Parenting stress and closeness mothers of typically developing children and mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 24(3), 178-187.
Howe, D. (2006). Disabled children, parent–child interaction and attachment. Child & family social work, 11(2), 95-106.
Leerkes, E.M., & Burney, R.V. (2007). The development of parenting efficacy among new mothers and fathers. Infancy, 12, 45-67.
Lopez, V., Clifford, T., Minnes, P. & Ouellette-Kuntz, H. (2008). Parental stress and coping in families of children with and without developmental delays. Journal of Developmental Disabilities, 14(2), 99-104.
Kazak, A. E., & Marvin, R. S. (1984). Differences, difficulties and adaptation: Stress and social networks in families with a handicapped child. Family Relations, 67-77.
Klemenović, Jasmina (2014). Spremnost za školu u inkluzivnom kontekstu, Novi Sad : Filozofski fakultet u Novom Sadu. ISBN:978-86-6065-291-3
Kovačević, N. (2015). Spremnost vaspitača za rad u inkluzivnom obrazovnom kontekstu. Usmeno saopštenje na 6. Međunarodnoj naučnoj konferenciji „Inkluzija u predškolskoj ustanovi i osnovnoj školi“, Sremska Mitrovica, Srbija.
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Krstić, T., Bugarski, V., Brkić, N. i Obradović. B. (2013). Odnos majke prema detetovoj dijagnozi cerebralne paralize. Medicinski pregled, 66(3-4), 181-184.
Marvin, R.S. & Pianta, R.C. (1996). Mothers’ reaction to their child’s diagnosis: Relations with security of Attachment. Journal of Clinical Child Psychology, 25(4), 436-443.
Mash, E. J., & Johnston, C. (1990). Determinants of parenting stress: Illustrations from families of hyperactive children and families of physically abused children. Journal of Clinical Child Psychology, 19(4), 313-328.
McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of autism and developmental disorders, 44(12), 3101-3118.
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Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams: Supporting parents’ adaptation to their child with special needs. Infants and Young Children, 16(3), 184-200.
Bradley, R.H., Whiteside-Mansell, L., Brisby, J.A. & Caldwell, B.M. (1997). Parents’ socioemotional investment in child. Journal of Marriage and Family. 59(1), 77-90.
Case, S. (2000). Refocusing on parent: What are the social issues of concern for parents with disabled child. Disability & Society, 15(2), 271-292.
Cawley, J., Hayden, S., Cade, E., & Baker-Kroczynski, S. (2002). Including students with disabilities into the general education science classroom. Exceptional Children, 68(4), 423-435.
Clements, M., & Barnett, D. (2002). Parenting and attachment among toddlers with congenital anomalies: Examining the Strange Situation and attachment Q‐sort. Infant mental health journal, 23(6), 625-642.
Cousino, M. K., & Hazen, R. A. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review. Journal of pediatric psychology, 38(8), 809-828.
Crnic, K. A., Friedrich, W. N., & Greenberg, M. T. (2002). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology. Best of AADD: Families and developmental delay: AA collection of notable AADD journal articles across the 20th century, 105-117.
Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266-280.
Damjanović, D,. Mihić, I. i Jestrović, J. (2014). Roditeljski sres pri adaptaciji dece na vrtić: izvori stresa i njegov intenzitet. Zbornik instituta za pedagoška istraživanja, 46(2), 451-472.
Danklefsen, P., R. (2008). Perceptions of collaboration of parents of students with disabilities and service providers. Unpublished doctoral dissertation. Ashland University, Ashland, OH.
Davies, S., & Hall, D. (2005). “Contact A Family”: professionals and parents in partnership. Archives of disease in childhood, 90(10), 1053-1057.
Deater‐Deckard, K. (1998). Parenting stress and child adjustment: Some old hypotheses and new questions. Clinical Psychology: Science and Practice,5(3), 314-332.
Deater-Deckard, K., & Scarr, S. (1996). Parenting stress among dual-earner mothers and fathers: Are there gender differences? Journal of Family Psychology, 10(1), 45-59.
Dedaj, M. (2015). Podrška u realizaciji inkluzivnog obrazovanja iz perspective vaspitača i učitelja. . Usmeno saopštenje na 6. Međunarodnoj naučnoj konferenciji „Inkluzija u predškolskoj ustanovi i osnovnoj školi“, Sremska Mitrovica, Srbija.
Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development.Exceptionality: A Special Education Journal, 2(2), 97-110.
Evans, D. (1989). Psychological Impact of Disability and Illness on Medical Treatment Decisionmaking, The. Issues of Law & Medicine, 5, 277-299.
Feniger-Schaal, R., & Oppenheim, D. (2013). Resolution of the diagnosis and maternal sensitivity among mothers of children with intellectual disability. Research in developmental disabilities, 34(1), 306-313.
Fish, W. W. (2006). Perceptions of parents of students with autism towards the IEP meeting: A case study of one family support group chapter. Education, 127 (1), 56-68.
Hanak, N. (2012). Prenatalna afektivna vezanost i psihološki procesi tokom trudnoće: priprema za roditeljstvo. U: Stefanović-Stanojević, T., Mihić, I., Hanak, N. (Ur.), Afektivna vezanost i porodični odnosi: razvoj i značaj. (str. 57-81). Beograd: Centar za primenjenu psihologiju.
Haskett, M. E., Nears, K., Ward, C. S., & McPherson, A. V. (2006). Diversity in adjustment of maltreated children: Factors associated with resilient functioning. Clinical psychology review, 26(6), 796-812.
Heiman, T. (2002). Parents of children with disabilities: Resilience, coping, and future expectations. Journal of developmental and physical disabilities, 14(2), 159-171.
Hoffman, C. D., Sweeney, D. P., Hodge, D., Lopez-Wagner, M. C., & Looney, L. (2009). Parenting stress and closeness mothers of typically developing children and mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 24(3), 178-187.
Howe, D. (2006). Disabled children, parent–child interaction and attachment. Child & family social work, 11(2), 95-106.
Leerkes, E.M., & Burney, R.V. (2007). The development of parenting efficacy among new mothers and fathers. Infancy, 12, 45-67.
Lopez, V., Clifford, T., Minnes, P. & Ouellette-Kuntz, H. (2008). Parental stress and coping in families of children with and without developmental delays. Journal of Developmental Disabilities, 14(2), 99-104.
Kazak, A. E., & Marvin, R. S. (1984). Differences, difficulties and adaptation: Stress and social networks in families with a handicapped child. Family Relations, 67-77.
Klemenović, Jasmina (2014). Spremnost za školu u inkluzivnom kontekstu, Novi Sad : Filozofski fakultet u Novom Sadu. ISBN:978-86-6065-291-3
Kovačević, N. (2015). Spremnost vaspitača za rad u inkluzivnom obrazovnom kontekstu. Usmeno saopštenje na 6. Međunarodnoj naučnoj konferenciji „Inkluzija u predškolskoj ustanovi i osnovnoj školi“, Sremska Mitrovica, Srbija.
Krstić, T. (2013). Majke hronično ometene dece: prihvatanje dijagnoze i prevladavanje stresa. Neobjavljena doktorska disertacija. Novi Sad: Filozofski fakultet.
Krstić, T., Bugarski, V., Brkić, N. i Obradović. B. (2013). Odnos majke prema detetovoj dijagnozi cerebralne paralize. Medicinski pregled, 66(3-4), 181-184.
Marvin, R.S. & Pianta, R.C. (1996). Mothers’ reaction to their child’s diagnosis: Relations with security of Attachment. Journal of Clinical Child Psychology, 25(4), 436-443.
Mash, E. J., & Johnston, C. (1990). Determinants of parenting stress: Illustrations from families of hyperactive children and families of physically abused children. Journal of Clinical Child Psychology, 19(4), 313-328.
McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of autism and developmental disorders, 44(12), 3101-3118.
Mihić I. (2009). Socioemocionalna posvećenost roditelja detetu. U: M.Zotović, I.Mihić, J. Petrović (ur). Psihološka procena porodice- mogućnosti i ograničenja. (str. 23-33). Novi Sad: Filozofski fakultet.
Mihić, I. i Rajić, M. (2015). Usluge u lokalnoj zajednici za porodice dece sa smetnjama u razvoju: uloga predškolskih ustanova. U Kuburić i sar. (Ur.) (2010). Istraživanja u oblasti socijalnog rada, socijalne zaštite i socijalne politike. Novi Sad: Filozofski fakultet
Mitchell, D., B. & Hauser-Cram, P. (2008). The well-being of mothers of adolescents with developmental disabilities in relation to medical care utilization and satisfaction with health care. Research in Developmental Disabilities, 29(2), 97-112.
Olsson, M. B., & Hwang, C. P. (2001). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45(6), 535-543.
Osborne, L. A., & Reed, P. (2010). Stress and self-perceived parenting behaviors of parents of children with autistic spectrum conditions. Research in Autism Spectrum Disorders, 4(3), 405-414.
Pain H. (1999). Coping with a child with disabilities from the parents` pespective: The function of information. Child: Care, health and development, 25(4), 299-312.
Profaca, B. i Arambašić, L. (2004). Upitnik izvora i intenziteta roditeljskog stresa. Suvremena psihologija, 7(2), 243-260.
Rajić, M., Mihić, I., Kopunović Torma, D. (2015). Socioemocionalna posvećenost roditelja dece sa smetnjama u razvoju: razlike između majki i očeva. Godišnjak Filozofskog fakulteta u Novom Sadu. 40(2), 137-152.
Rajić, M., Mihić, I. i Kopunović Torma, D. (2015). Stres roditeljstva, koroditeljski savez i briga o detetu sa smetnjama u razvoju. Usmeno saopštenje na naučno-stručnom skupu „Savremeni trendovi u psihologiji“, Filozofski fakultet, Novi Sad, oktobar 2015.
Rajić, M., Mihić, I., Krstić, T., Drezga, M. i Branković, J. (2015). Potreba za podrškom porodicama dece sa smetnjama u razvoju: procena roditelja. Usmeno saopštenje na 11. Internacionalnoj konferenciji "Dani primenjene psihologije", Niš, 25-26. septembar 2015. Univerzitet u Nišu, Filozofski fakultet, Odsek za psihologiju, Knjiga rezimea 71. ISBN 978-86-7379-384-9.
Rajović, V. (2011). Rizici odrastanja dece sa teškoćama. U: Mitić, M. (Ur.), Deca sa smetnjama u razvoju: potrebe i podrška. (str. 44-46). Beograd: Republički zavod za socijalnu zaštitu.
Reichman, N. E., Corman, H., & Noonan, K. (2004). Effects of child health on parents’ relationship status. Demography, 41(3), 569-584.
Rodriguez, C. M., & Murphy, L. (1997). Parenting stress and abuse potential in mothers of children with developmental disabilities. Child Maltreatment, 2(3), 245-251.
Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child & Family Behavior Therapy, 19(4), 15-32.
Schneider-Rosen, K., & Cicchetti, D. (1991). Early self-knowledge and emotional development: Visual self-recognition and affective reactions to mirror self-images in maltreated and non-maltreated toddlers. Developmental Psychology, 27(3), 471.
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